Genetic Alliance UK (Rare Disease UK and SWAN UK)
020 7831 0883
Genetic Alliance UK is the national charity working to improve the lives of patients and families affected by all types of genetic conditions. We are an alliance of over 200 patient organisations.
Our aim is to ensure that high-quality services, information and support are provided to all who need them. We actively support research and innovation across the field of genetic medicine.
Genetic Alliance UK runs the family support network SWAN UK for families of children and young adults with undiagnosed genetic conditions, or syndromes without a name (SWAN).
Rare Disease UK is the national campaign for people with rare diseases and all who support them, run by Genetic Alliance UK
Registered Charity Number in Scotland SCO39299